I am a mother of 2, I have a daughter who is 7 and a son that is 12 (I have raised him since he was 4) and a wonderful boyfriend of 9 years. I am a current pre- nursing student, I’m in the application process right now. I have a associates in medical assisting and worked in the medical field for 2 years before this disease started and, after next semester I will have a liberal arts associates degree so at the end I will have 3 associates. I live in NH and I am from MA moved here to NH when I was 10.
I have been living with multiple sclerosis for about 4 years now. Today, I am still not diagnosed and I’m still not on medication for it. I went to Mass General Hospital and saw the director of a “specialty” there and this man has done research studies on MS, he was a MS specialist and has an extremely impressive profile. He told me that I have multiple sclerosis and that I should have been diagnosed 4 years ago when I had my first episode and with a lesion or multiple lesions showing in my MRI and that I should and need to be on medication asap. He said that all my so called “conditions” are all symptoms pertaining to MS (which I knew) but my neurologist here doesn’t or does now.
Today I live with a wide variety of symptoms and issues that are not ever going to go away and I never know what tomorrow will bring. I now have at least 6-10 new lesions in my brain as well as 10-20 in my spinal cord. I have been given every test in the book at least 2-5 times and one that the Dr. from Mass general said he hasn’t seen used in over 10 years.
My next blog will be about day 1 when I got optic neuritis for the first time and it will be more in depth about my journey alone to finding myself in this huge mess of a life that could have been helped a long time ago.