https://twitter.com/jennya2584/status/537774159540260865It’s 12:34 a.m. morning after Thanksgiving and I can’t sleep though extremely tired. I was in bed but I started to think about my situation now. I’m happy I don’t have cancer or a stroke or anything worse because, before I went to Mass General I thought I was going to go there and find out I had brain caner or lymphoma I said “if I have MS that’s my answer I’m happy I’ll take that over anything else”. Now I know I’ve had it for 4 long miserable painful years and I knew I was right but nobody would listen. Now, we’ll see if my neurologist calls tomorrow (or today) should I call him? Should I call my PCP and tell her? I will she’s very nice and thought that’s what it was to without even seeing the MRI’S. But, that’s tomorrow.
The day it started I was working as a CMA at a Doctors office, a family practice for a hospital that is affiliated with my neurologist’s office as well. I woke up and I couldn’t see out of my right eye and it hurt a lot. Thought nothing of it went to work and was like ok it’s like staring straight into the sun I just saw a bright lite. I worked with Doctors so I asked them their opinion and they said go see an eye Dr. asap “you don’t want to mess with your eyes”, so I saw one they recommended. Went to the eye Dr. they said it looked like optic neuritis and that’s usually the first sign of multiple sclerosis so my eye Dr. ordered my first MRI. They told me I should see a neurologist and bring the MRI and ask them what they think.
So at work I asked who’s the best neurologist around here? They all suggested Dr.88 well call him. So I had my Dr. refer me and off I was to meet Dr.88. By the time I saw him my eye got better basically my first “attack” was almost over (had been 3 weeks now). The radiologist’s reading said I did have optic neuritis and he saw 2 separate places of demyelination and 1 lesion. My neurologist said “your young if you have another attack which probably won’t be for another 5-10 years we’ll worry about it then” . That was the end of that. I went back to my PCP because I had an appointment anyway and asked if anyone diagnosed me or gave me and meds and nobody did so she gave me pain medication and a anti-inflammatory she was surprised again!
I clearly knew what MS was because my boyfriend’s mom has it and I worked at a Dr’s office as a CMA. I didn’t know what it felt like though!!! So I moved on with my life….so I thought I could
Thanks to whoever saw it I should really get some rest now (or try anyway)
My PCP at the time new what it was too.