So today I am supposed to be in Massachusetts at my friends funeral but, I couldn’t go because its just to much right now. I’m scared I’ll have an attack well I’m pretty sure it’s already starting….I’m getting used to it though being able to feel when they are coming on. The bad part is that when a person with MS had an attack it causes another lesion. My neurologist (here) called today to tell me that my insurance absolutely will not cover a lumbar spine MRI. I see why they won’t cause I’ve had 2 recently already. Now he wants to do a spinal tap! My neurologist himself said he doesn’t do those because they can be negative and you can still have MS so it really doesn’t help. They also said my Dr. is on vacation so I probably won’t hear from him for a few weeks. I haven’t heard anything from Mass General yet….I’m sure I will their just actually busier!
Meanwhile….I’m holding on the best I can trying not to be so exhausted and get up on time to take the kid’s to school. I still also want to try and get a grant to put a benefit on for MS research with all the proceedings to go to MS organizations to help everyone with this disease and to help people get a faster and better diagnosis.
Guess I should call and see how the wake is going…
R.I.P. my forever childhood friend a.k.a “Doey”
One love ❤