So today I am supposed to be in Massachusetts at my friends funeral but, I couldn’t go because its just to much right now. I’m scared I’ll have an attack well I’m pretty sure it’s already starting….I’m getting used to it though being able to feel when they are coming on. The bad part is that when a person with MS had an attack it causes another lesion. My neurologist (here) called today to tell me that my insurance absolutely will not cover a lumbar spine MRI. I see why they won’t cause I’ve had 2 recently already. Now he wants to do a spinal tap! My neurologist himself said he doesn’t do those because they can be negative and you can still have MS so it really doesn’t help. They also said my Dr. is on vacation so I probably won’t hear from him for a few weeks. I haven’t heard anything from Mass General yet….I’m sure I will their just actually busier!

Meanwhile….I’m holding on the best I can trying not to be so exhausted and get up on time to take the kid’s to school.  I still also want to try and get a grant to put a benefit on for MS research with all the proceedings to go to MS organizations to help everyone with this disease and to help people get a faster and better diagnosis.

Guess I should call and see how the wake is going…

R.I.P. my forever childhood friend  a.k.a “Doey”

One love ❤

I'm a 35 year old single mom just wobbling through life in my own shoes trying to figure it out like the rest of the world. Music is the love of my life and writing is the passion for which I express my true feelings and the only way I know how too. I love my amazing daughter she's the smartest person I've ever met and the most beautiful inside and out and I cherish every moment I have with her. I'm preparing my new blog "Reality Check," because it's just that we all like to try and hide our realities sometimes and it kicks our ass on bad days and the good days seem like I'm opening my eyes for the first time. This blog is the most special one I'll ever write because it's all truth and I can't lie I refuse to hide any part of my existence because I DO exist and so do my words like all of us and we all have stories to tell that have made us who we are and those stories are our "reality check's" they'll make you laugh, cry, cringe, scare you, surprise you, but most of all they'll show how every one of us is the same and we're all in this together so let's share who we are and what us uniquely beautiful.

13 thoughts on “Help ME Host a Benefit!!!”

  1. Pingback: My Homepage

  2. Simply wish to say your article is as surprising. The clearness
    in your submit is just spectacular and i can suppose you are knowledgeable in this subject.
    Well with your permission allow me to snatch your RSS feed to stay up to date with approaching post.
    Thank you one million and please continue the gratifying work.

    Liked by 1 person

    Reply

    1. THANKS FABIAN I APPRECIATE IT!!! I AM PRETTY KNOWLEGABLE ABOUT MS CONSIDERING I AM IN THE HEALTH CARE BUSINESS AND IN SCHOOL FOR NURSING. I WOULD LOVE FOR YOU TO KEEP UP TO DATE WITH MY BLOG THAT’S AWESOME TO HEAR!!

      Like

      Reply

  3. Usually I don’t read article on blogs, but I would like to say that this write-up very compelled me to try and do so! Your writing style has been amazed me. Thanks, very great article.

    Like

    Reply

  4. Thank you for your blog post. Thomas and I have already been saving for our new guide on this topic and your writing has made all of us to save our money. Your ideas really clarified all our issues. In fact, more than what we had known in advance of the time we came upon your great blog. I no longer nurture doubts plus a troubled mind because you have attended to our needs in this article. Thanks

    Like

    Reply

  5. I simply wanted to post a small note to appreciate you for the wonderful tips you are posting here. My time-consuming internet investigation has at the end of the day been recognized with professional ideas to write about with my partners. I would suppose that most of us site visitors are unquestionably lucky to dwell in a decent website with many awesome individuals with good tactics. I feel very fortunate to have discovered the site and look forward to so many more brilliant moments reading here. Thanks again for all the details.

    Like

    Reply

  7. Its like you read my mind! You appear to know so much about this, like you wrote the book in it or something. I think that you could do with a few pics to drive the message home a bit, but other than that, this is wonderful blog. A fantastic read. I will definitely be back.

    Like

    Reply

  8. I’m impressed, I must say. Actually hardly ever do I encounter a weblog that’s each educative and entertaining, and let me tell you, you’ve got hit the nail on the head. Your idea is outstanding; the problem is one thing that not enough persons are speaking intelligently about. I am very happy that I stumbled across this in my seek for one thing relating to this.

    Like

    Reply

  11. Hi my name is Sandra and I just wanted to drop you a quick note here instead of calling you. I discovered your Help ME Host a Benefit!!! | My Unique Multiple Sclerosis Story page and noticed you could have a lot more visitors. I have found that the key to running a popular website is making sure the visitors you are getting are interested in your subject matter. There is a company that you can get targeted traffic from and they let you try the service for free for 7 days. I managed to get over 300 targeted visitors to day to my website. Visit them here: http://s.beautheac.net/2j

    Like

    Reply

Please leave a comment or start a discussion