Hey everyone I hope all is well!! Just a quick update on how things are going. My TB blood test which was a T spot was negative! There’s one test done. I saw my Neurologist at MGH yesterday. Thanks to my WONDERFUL boyfriend for coming with me and supporting me!! She said that I DO need to have more tests done as well as I’ll be do for another MRI in August. I need to have: another sleep study done and see a sleep specialist, I need to see a Rheumatologist because I also have fibromyalgia (which I knew), and have a skin biopsy done. She said my symptoms that I’m having issues with lately don’t have to do with my MS that it’s something else, possibly one of many connective tissue diseases.Thanks God for this Neurologist she is amazing and has accomplished so much at such a young age. She just got back from traveling, which she travels all around the world to research and help people. What an inspirations she is already and I’m EXTREMELY LUCKY to have found her.
If your wondering my symptoms I’ve been having trouble with lately are: randomly falling asleep (which I was diagnosed narcoleptic about 4 years ago), really bad swelling in my legs and feet, skin changes (all of a sudden I have vitilgo), and extremely horrific pain in numerous areas. I’ve decided not to take any medication for MS because, the Copaxone just made me even more miserable and caused orange sized welts and bruises all over my body and I’m allergic to it. She said that’s my choice and she didn’t disagree with my decision. It’s so great to have an awesome Neurologist who believes me and doesn’t just say, “well that’s not my area or everyone has different symptoms”. She says this has to do with MS and this doesn’t. No bullshitting and no run around. How relieving!!
So…on that note I would say things are starting to finally look up!!! I was expecting horrible news but, she’s very thorough and I love that! Until next time everyone I’ll see you on the flip side! I want to thank all of my followers and I appreciate all the wonderful comments everyone has made I feel like I’ve made a new family on here!!