For A Good Cause and A Chance To Really Help

For A Good Cause and A Chance To Really Help

Hello everyone! once again sorry for not written for a little bit I’ve been sick dealing,  and with emotional and painful situations. I had the final test done Tuesday the spinal tap or lumbar puncture.It really wasn’t as bad as I though it was it was going to be the doctors said it was the fastest one they ever did. I guess because, usually it takes the spinal fluid a little bit to drip into the needle apparently mine just flowed right out. I should have all of my test results by Tuesday or Wednesday. I honestly wasn’t all about getting a spinal tap but, now my neurologist can’t give me anymore tests because now, I’ve had them all ( ha ha ha).

So this is Big!! I’m not part of the MS Society Volunteer’s. Below is the information about an upcoming bike race which will be my first volunteer job for the MS Society.

I’m working on how I or we can raise money for this race. My personal goal is $300 if we could make this goal or more money for the MS Society we’ll be helping out for an incurable disease that many people have and that is misunderstood and overlooked by many. I have a lot of fun ideas to raise money and many, many more!! My daughter already said she’s going to have a bake sale and brings her friends!! Please contact me or check out the website below. It’s worth taking one day to help our fellow brothers and sisters to live a life they deserve and to ley lose and have fun!!

Its also a great website to learn about MS whether you have it, or a spouse, or any relative or friend. It has great information and support.

I also have my own profile on the www.nationalmssociety.org just look me up 😉

 Bike MS: New Hampshire Seacoast Escape 2015

Date: August 22, 2015

Location: Stratham Hill Park

Time: Registration opens at 7:30 a.m. Start time 8:30 a.m.

Contact Information:
Kim Blanchard
1-800-344-4867
BikeMSGNE@nmss.org

Until tomorrow next time!

ONE LOVE!!!

good quote from P

IG!! I am now part of the MS Society volunteer’s. I am volunteering at the next bike race in Stratham, N

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Finding Peace With My MS

Finding Peace With My MS

Happy New Year everyone! Anything I post is from my own personal opinion only!! I refer to my blogs like a journal that I want to share with anyone who may be able to relate or hopefully to reach out to others so you know your not alone no matter what disease or illness you may have!

So I have decided to go ahead and get the lumbar puncture.If the Dr. thinks it’s necessary I should  just get over it and do it. I’ll be ok I’ve had worse pain, so whatever. I will be starting Copxone most likely within the nest 2 weeks. It’s a daily subcutaneous injection which I have given many before to patients when I worked in the Doctor’s office as a C.M.A. I’ve never given one to myself, but luckily I’m not scared of needles considering I have about 15 tattoos. I’ve made my peace with it and  I have come to terms with the fact that its out of my control, and I need to do what I need to do for my health. With MS whatever damage is done, is done. You don’t get better the medication is given to patients to try and slow the progression of the disease. It doesn’t fix it or make it better it just ties to slow down the disabling process. MS is a disabling disease and everyone who has it  is different and has different symptom. There are 4 different forms of MS; relapse-remitting, secondary relapse-remitting, progressive and I think primary progressive. I can’t complain because it could be worse and eventually it may get worse or not time will tell. I have to live day by day because, I could wake up tomorrow and be blind, or in a wheelchair, or have a stroke basically anything could happen. It’s pretty scary but. that’s life.

I want to see what I can do to host a benefit for MS and of course all donations will go to the MS society or for patients who can’t afford their medication etc… For anyone who needs help! I was thinking maybe having a walk or run maybe on the beach or in Portsmouth or maybe even a family hike!  I’m thinking either from spring to fall time because, the heat kills me and I believe most people with MS from what I’ve heard. If anyone has any ideas or wants to help out that would be awesome! I am going to do this I’m determined! I’ll keep you all updated 🙂

Until next time!

One Love,

Jenny 🙂

A Post To Help Host A Benefit Here in NH!! Let’s Do This!!

I need help and I would love to hear your thoughts please on hosting a benefit for MS!!!

 

http://www.youtube.com/watch?v=3aF9AJm0RFc

IS THIS REAL??

IS THIS REAL??

A quick update….today I called my neurologist’s office again to get my results of my spinal MRI, “We’ll call you back”, they said. Like I haven’t heard that before. Called the MS association to see where I can go that will except my insurance and the closet place is Boston so I’m going back there. I called my PCP to see if she got my results and, she called me back herself!! That’s rare she never received a copy either. Next I called medical records and sure enough they said ya come on down and get a copy we’re waiting for you. I went got my copy and it states….I have degenerative disc disease, disc protrusions, tumors, budges, hemangiomas, spinal stenosis etc…. so it’s not looing so good 😦   Still have not heard from my OLD (now) neurologist and the next appointment I could get isn’t until the end of January and he specifically said “don’t giver her a follow up appointment”! This is absolutely ridiculous! I have a bad feeling something else is going on considering my PCP said I should see a cancer specialist. Honestly, I’m scared to go to sleep, lift something to heavy, miss out on anything that has to do with my kid’s and family etc… I have never been so scared in my whole life it would be different if I didn’t kids or a wonderful family and boyfriend (he’s great). If it wasn’t for my family (and my bf) we wouldn’t be having a Christmas, have food, pay bills etc… I hate taking anything from anyone and I’m not supposed to be helpless, I’m supposed to be helpful. I hate this, I hate this, I hate this!! I apologize from the bottom of my heart if I ever offended anyone (family, friends) anyone who reads this. It was never my intention I don’t think I did anything to but, everyone has their own morals 😉

I don’t know what else to do anymore but I WILL NOT JUST ROLL OVER AND DIE!!!! NEVER!!!  If anyone has any suggestions on how I can get the ball rolling on getting the medication I need ASAP please comment or like this blog so WE can be heard!!! To everyone who reads this or follows me or has reached out I hold a special place in my heart for all of you thank you!!!

What bother me the most is people who judge what they don’t know because they can’t see OUR PAIN, or blame it on being lazy believe me I have no time to be lazy! Close minded people who don’t understand until they have walked just a day in OUR shoes. Well, I hope to change that someday! I love you all ❤

Until tomorrow!!

One love,

Jenny

PLEASE I NEED YOUR HELP!! LEAVE A COMMENT!! :)

PLEASE I NEED YOUR HELP!! LEAVE A COMMENT!! :)

Hey everyone so please comment on this to let me know your opinion! I want to hear from you and know what you think PLEASE!!!  Does anyone think what I’m doing to try and help support others like me that have suffered or their families have suffered do to their illness when in fact something could have been done sooner? Do you think I should keep going no matter what in terms of fighting for my beliefs? Is anyone interested in helping me hold a awesome benefit for multiple sclerosis and for all proceeds they be going to an organization of my reader’s choice? How do you feel about medical marijuana, especially the dispensary that is trying to open in Epping, NH? Do you believe it will/does help with chronic pain, anxiety, appetite, depression and much and, also more than pain clinics who just want to give us medications to support the pharmaceutical companies who run all hospitals?

This song to me is about I feel that I get treated and looked at because; I’m young, pretty, intelligent, a woman who knows exactly what she wants, how these Doctor’s work, or I get a “well you look fine”, they think I just want pain meds (not true at all), I don’t look “sick” all the time etc…..

My lover’s got humour
She’s the giggle at a funeral
Knows everybody’s disapproval
I should’ve worshipped her sooner
If the Heavens ever did speak
She is the last true mouthpiece
Every Sunday’s getting more bleak
A fresh poison each week
‘We were born sick,’ you heard them say it
My church offers no absolution
She tells me ‘worship in the bedroom’
The only heaven I’ll be sent to
Is when I’m alone with you
I was born sick, but I love it
Command me to be well
Amen. Amen. Amen

Take me to church
I’ll worship like a dog at the shrine of your lies
I’ll tell you my sins and you can sharpen your knife
Offer me that deathless death
Good God, let me give you my life
If I’m a pagan of the good times
My lover’s the sunlight
To keep the Goddess on my side
She demands a sacrifice
To drain the whole sea
Get something shiny
Something meaty for the main course
That’s a fine looking high horse
What you got in the stable?
We’ve a lot of starving faithful
That looks tasty
That looks plenty
This is hungry work
Take me to church
I’ll worship like a dog at the shrine of your lies
I’ll tell you my sins and you can sharpen your knife
Offer me that deathless death
Good God, let me give you my
No masters or kings when the ritual begins
There is no sweeter innocence than our gentle sin
In the madness and soil of that sad earthly scene
Only then I am human
Only then I am clean
Amen. Amen. Amen

Take me to church
I’ll worship like a dog at the shrine of your lies
I’ll tell you my sins and you can sharpen your knife
Offer me that deathless death
Good God, let me give you my life

Oh, I’ve also got from my Nana who does have dementia that ” This happened to me because I turned my back on God”. She also has no idea what I believe in or whom I believe in. But, I just it all roll off my back because, I know that everything happens for a reason. I honestly believe that this was a blessing sent to me to give me strength, courage, a voice that I must make be heard, my way to help others (considering I don’t now what my future holds, career wise), and to find my true calling in life. Living everyday not knowing what tomorrow holds is a way everyone lives but, now I know it’s different for me now.

Please help out so I can decide ( I’m a Libra) how to move forward!!! I trust you!! I believe in you like all of you who have read my blogs and continue to do so, please know how that this means so much to me in a way I cannot describe 😉

One love friends,

Jenny ❤

See you soon!!! Thanks for reading!!!

The Story Begins….

https://twitter.com/jennya2584/status/537774159540260865It’s 12:34 a.m. morning after Thanksgiving and I can’t sleep though extremely tired. I was in bed but I started to think about my situation now. I’m happy I don’t have cancer or a stroke or anything worse because, before I went to Mass General I thought I was going to go there and find out I had brain caner or lymphoma I said  “if I have MS that’s my answer I’m happy I’ll take that over anything else”. Now I know I’ve had it for 4 long miserable painful years and I knew I was right but nobody would listen. Now, we’ll see if my neurologist calls tomorrow (or today) should I call him? Should I call my PCP and tell her? I will she’s very nice and thought that’s what it was to without even seeing the MRI’S. But, that’s tomorrow.

The day it started I was working as a CMA at a Doctors office, a family practice for a hospital that is affiliated with my neurologist’s office as well. I woke up and I couldn’t see out of my right eye and it hurt a lot. Thought nothing of it went to work and was like ok it’s like staring straight into the sun I just saw a bright lite. I worked with Doctors so I asked them their opinion and they said go see an eye Dr. asap “you don’t want to mess with your eyes”, so I saw one they recommended. Went to the eye Dr. they said it looked like optic neuritis and that’s usually the first sign of multiple sclerosis so my eye Dr. ordered my first MRI. They told me I should see a neurologist and bring the MRI and ask them what they think.

So at work I asked who’s the best neurologist around here? They all suggested Dr.88 well call him. So I had my Dr. refer me and off I was to meet Dr.88. By the time I saw him my eye got better basically my first “attack” was almost over (had been 3 weeks now). The radiologist’s reading said I did have optic neuritis and he saw 2 separate places of demyelination and 1 lesion. My neurologist said “your young if you have another attack which probably won’t be for another 5-10 years we’ll worry about it then” . That was the end of that. I went back to my PCP because I had an appointment anyway and  asked if anyone diagnosed me or gave me and meds and nobody did so she gave me pain medication and a anti-inflammatory she was surprised again!

I clearly knew what MS was because my boyfriend’s mom has it and I worked at a Dr’s office as a CMA. I didn’t know what it felt like though!!! So I moved on with my life….so I thought I could

Thanks to whoever saw it I should really get some rest now (or try anyway)

One love

Jenny

My PCP at the time new what it was too.